Quality of Life Survey in Children with Nephrotic Syndrome
We wanted to hear how nephrotic syndrome affected your life! PROMIS is an online survey for children and teenagers with nephrotic syndrome.
The survey was completed 3 times:
- When participants had swelling and protein in their urine
- When the swelling and protein went away (or 3 months later)
- One year later
Parent or guardian permission is required.
- Ages of 8-17 years old
- Nephrotic syndrome
For more information please see our website:
Emily Herreshoff, CCRP
Phone: (734) 232-4252