Quality of Life Survey in Children with Nephrotic Syndrome

Validation of PROMIS Pediatric Banks with Nephrotic Syndrome

Study overview

We wanted to hear how nephrotic syndrome affected your life! PROMIS is an online survey for children and teenagers with nephrotic syndrome.

The survey was completed 3 times:

- When participants had swelling and protein in their urine
- When the swelling and protein went away (or 3 months later)
- One year later

Parent or guardian permission is required.

Eligibility Criteria

- Ages of 8-17 years old
- Nephrotic syndrome

Have Questions?

For more information please see our website:


Or contact:

Emily Herreshoff, CCRP
Phone: (734) 232-4252
Email: umkidneystudies@umich.edu

PROMIS Study Links